Much of the experience of life with a chronic health condition often remains hidden, resulting in limited public dialogue and understanding. In private, an overwhelming inventory of material, responsibility, and dependency, while in public, a deficiency or invisibility. Beyond the whims of the human body, technological, political, and economic instability further complicate survival. This research explores how alternative methods of documentation, organization, and production might recontextualize central components of this experience in order to better understand the condition itself.
Read his related post on the web.